Category Archives: Uncategorized

Days Until Discharge: 11 👍 Today, we took Calvin on his very first “outing” and he handled it like a champ! He has only used his HME (Heat & Moisture Exchanger) once so far and that was for 15 minutes on Tuesday. The HME is a device that allows Calvin to be portable: it “traps” theContinue reading “Calvin’s First “Outing”!”

Days Until Discharge: 13 👍 Time is flying. Calvin will be home with us in less than two weeks and it’s going to be here before we know it. The time between then and now is packed – something is happening almost every day! ➡️ Thursday (7th): We have a discharge meeting at 2:30pm to discuss allContinue reading “Time is Flying!”

Days Until Discharge: 19 👍 This guy has an MRI at 11:30 this morning (Thursday) and we are hoping to get results early next week. This MRI *should* show the neurologist and Calvin’s complex care team where things are at with his brain. We have been pushing for this MRI for a few months now andContinue reading “MRI Tomorrow”

Happy Nine Months to these cuties! 🎈 They both weigh over 14 pounds, love to smile, and are ticklish pretty much everywhere! Katharina has two teeth as of last week, has been trying oat cereal on a semi-regular basis, and is quite the chatterbox! She goes for her opthalmologist appointment next week when we [should] find outContinue reading “Nine Months Old!”

Days Until Discharge: 28 👍 Unfortunately, Calvin was transferred back to PCCU overnight because of increased work in breathing and needing to be put back on the ventilator. Over the last few days, he has been showing signs of being sick and his oxygen saturations were quite low last night when Corey visited. He was requiringContinue reading “Calvin Has Influenza…”

Days Until Discharge: 36 👍 Our predictive discharge date is Tuesday, March 19th and this mama is getting sooooo exciiiiiiited! Here are the main goals that need to be reached and things that need to happen before discharge: ➡️ Trach Training: Corey, myself and my mother-in-law have all done one trach change. Each of us have toContinue reading “We Have a Discharge Date!!!”

This man with his babies! 😍 He loves making them smile and can’t get enough of the snuggles. The twins were 8 months old on Saturday. We are so excited that we will have everyone under one roof before their first birthday! 🎈

Nana (Corey’s Mom) holding Calvin for the FIRST time! 😍 This was about two weeks ago – a couple days after his GJ surgery – and I forgot until now to share them because of the busyness of that week, going back and forth between the twins in the hospital. They both loved every moment togetherContinue reading “First Snuggles with Nana”

Calvin has been doing so well since his surgery! Dr. Scott was overly pleased with how things went – much better than October’s surgery. He didn’t even need to go back on the ventilator so just one night in PCCU and then back up to the paediatrics floor! We began our trach training on TuesdayContinue reading “Preparing for Discharge!”

Even though a hospital is never a place you would choose to be, this has been one of the most exciting weeks of our twin journey so far! Finally having the opportunity to do “twins-y” things we have all waited so long to do – like simply napping or laying in bed together – CalvinContinue reading “Feeding Tube Surgeries | Update #5”