Calvin has been in the Paediatric Critical Care Unit for three weeks now. He was moved here because he has outgrown the NICU and yet remains in critical care. This unit is experienced in caring for babies with BPD (bronchopulmonary dysplasia), a chronic lung disease that Calvin was diagnosed with early on. Many premature babies have chronic lungs and most recover with little to no long-term issues. However, as the medical teams care for Calvin (both NICU and now PCCU), they are seeing the severity of his BPD and have said that the chance of his survival is very low.
Leading up to his most recent hernia surgery, Calvin had an MRI to see if it would shed any light on why he remains in such critical care after reaching full-term gestation. This scan has shown some brain abnormalities but we are still waiting on more information and answers regarding this. Complications that result from this will be in addition to the struggles that come with his BPD. Corey and I have known this for a little over a month now but are still processing this news and have many questions which remain unclear or unanswered.
In summary, Calvin may very likely never leave the hospital and we don’t know how long we have with him. Our hope rests in the Creator of the universe and we know that He holds Calvin in His hands and has a glorious purpose in all of this – one that we may never understand this side of eternity.
Obviously, I want to be spending as much time with Calvin as I can right now, but there are many children within PCCU that have contagious illnesses because of cold and flu season. We cannot risk Katharina getting sick as it could be fatal for her, so she and I moved back home this week. This allows me to visit Calvin without having to bring Katharina in with me. As much as I am excited to be home again with my husband and foster daughter, it is heartbreaking to no longer be close to my son.
We ask that you call or text before visiting and continue to pray that God would be glorified through the life of our son and in our family.
The Hughes Family 